This was a bright spot in the weekend for the kids and myself. That and the fact that Coulby is getting through another illness at HOME! He started complaining of a sore throat around last Thursday, was waking up in the night Thursday night into the early hours of Friday morning, and had started with decreased appetite somewhere in between all of this. There was obviously something going on, but we did not know what until late Friday afternoon. I had thought nothing of the sore throat until little reddish bumps resembling bug bites started popping out on Coulby's ankles, the bottoms of his feet and around his hands. He had the telltale sores in the back of his throat, common to Hand, Foot and Mouth disease. UGH!!!!
Sunday, July 25, 2010
How to Save a Life
This was a bright spot in the weekend for the kids and myself. That and the fact that Coulby is getting through another illness at HOME! He started complaining of a sore throat around last Thursday, was waking up in the night Thursday night into the early hours of Friday morning, and had started with decreased appetite somewhere in between all of this. There was obviously something going on, but we did not know what until late Friday afternoon. I had thought nothing of the sore throat until little reddish bumps resembling bug bites started popping out on Coulby's ankles, the bottoms of his feet and around his hands. He had the telltale sores in the back of his throat, common to Hand, Foot and Mouth disease. UGH!!!!
Saturday, July 17, 2010
It ain't easy being cheesy!...OR...Say cheese!...OR...The adventures of Coulby and the twisted cheese curls!
And these are no ordinary cheese curls. They are TWISTED cheese curls. These spiral things that look cool and take up a lot of room in the bag to make it look full even though it is not (one of the most annoying things about any bag of chips, really). 28g of cheese curls = 1.8g of protein and 160 calories. Coulby can eat about 75g or so in one sitting...about 429 calories! *Gasp* Guess most parents would be horrified that their child was consuming that many calories from cheese curls. But not parents of children with UCDs. The more calories the better. Kind of a foreign concept in this world of over-consumption and gluttony.
Not only does Coulby love cheese curls...twisted...but he makes sure he gets every last little bit of cheesy coating at the bottom of the bag. Kinda gross, but whatever works. Hence the above photo. That was Coulby post-empty-cheese-curl-bag. He had this cheesy beard and mustache going on that, while disgusting, was also very photo-worthy. I did not capture it well enough to do it justice, but the cheese was coated on his face, fingers and body pretty good. I could not be happier that there is something that I KNOW he will eat if nothing else. Until he gets tired of the twisted cheese curls, they will stock the pantry shelves.
On another note, Coulby had a Hopkins appointment yesterday. And his ammonia was...(drum roll)...29!! Yay! A number we can work with for sure! He has gained weight (thanks to twisted cheese curls, no doubt) and had an overall good check-up. Good news is always nice to report. A relief. A reminder of Coulby's miraculous life.
Friday, July 9, 2010
Life, Love and all things worth LOVING and LIVING for...
On LIFE:
"Look at life through the windshield, not the rear-view mirror."
~Byrd Baggett
On LOVE:
"You come to love not by finding the perfect person,but by seeing an imperfect person perfectly."
~Sam Keen
On FRIENDSHIP:
"A friend is one to whom one can pour out all the contents of one's heart, chaff and grain together, knowing that the gentlest of hands will take and sift it, keeping what is worth keeping, and, with the breath of kindness, blow the rest away."
~Arabian Proverb
On CHILDREN:
"While we try to teach our children all about life, our children teach us what life is all about."
~Angela Schwindt
On OPTIMISM:
"The average pencil is seven inches long, with just a half-inch eraser-in case you thought optimism was dead."
~Robert Brault